To provide decision support for everyday clinical practice, we develop evidence-based guidelines for Parkinson’s disease using international standards including AGREE. Practice recommendations are developed based on the results of a systematic literature review and appraisal, considerations of clinical experts and patient values. All guidelines are endorsed by Dutch national professional allied health associations and the patient’s society. The guidelines are available for downloading.

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FAQ copyright and use of the European Guidelines

Who has to be involved to ensure a transparent translation process of the guideline?
To ensure a transparent process and a high quality product, people minimally involved in the translation (and adaptation) process need to be:
  • a translator: one person (to have uniform language throughout the translation), highly educated, native speaker experienced in translating texts from English (preferable an official translator selected based on a one-page proof translation);
  • a member of the Guideline Development Group whose mother language equals the language for the translation, if available: to check for clear language, correct use of terminology and jargon, as well as the overall message of the Guideline;
  • the Guideline copyright holder: ParkinsonNet; to provide information and feedback to assure quality and transparency of translation and provide final permission for publication;
  • a panel of native speaking physiotherapists: to review the translated text to evaluate understanding and ease of use (if required, the translation should be adjusted)
To ensure quality and transparency, any updates and official (upcoming) translations will be published on the Guidelines website:
Am I allowed to translate only parts of the guideline?
ParkinsonNet really stimulates the translation of the Guideline into other languages! If money or time makes it impossible to translate the whole guideline, you may choose to translate only parts of it.
Am I allowed to use the forms in the appendices without asking permission from someone?
Yes you are. The Guideline Development Group has only recommended measurement tools that are free to use. Also the Quick Reference Cards can be (printed and) used in daily practice, but you are not allowed to print them several times in order to distribute them.
Am I allowed to use the Guideline for educational purposes?
Yes you are. Furthermore, you are allowed to share the link where people can get their own (free) copy of the Guideline. You are not allowed to distribute the copies or offer them in another way.
Am I allowed to summarise (parts of) the Guideline in my own words and/or discuss with colleagues within my work setting?
Yes you are. However, it is not allowed to publish (electronically) or distribute the Guideline, or any adapted or summarised version of it, for access by others, without prior permission in writing by the copyright holder.